The INSIGHT Clinical Research Network has been established to improve and streamline research in an effort to advance patient-centered research. Together, we can find answers that will save lives.
The INSIGHT Network was originally founded with support from the Patient-Centered Outcomes Research Institute (PCORI). In 2018 we transitioned to the People-Centered Research Foundation (PCRF) to create an accessible, sustainable, scalable clinical data network to facilitate patient-centered research, learning healthcare systems and the national research network—PCORnet. We bring together top academic medical centers, including Albert Einstein School of Medicine/Montefiore Medical Center, Columbia University and Weill Cornell Medicine/New York-Presbyterian Hospital, lcahn School of Medicine/Mount Sinai Health System, and New York University School of Medicine/Langone Medical Center.
The goal of the INSIGHT Network is to enable patients and medical providers to make better-informed clinical decisions, putting patients first.
The INSIGHT Network collects comprehensive medical histories for approximately 12 million patients. This robust data enables groundbreaking medical research in a way that ensures the privacy and security of our patients.
By participating in our research, patients give us the potential to provide the most thorough and detailed snapshot of patient care in New York City and the greater metropolitan area— information critical to determining how effective and economical existing health care treatments and delivery models are and how they compare against each other.
Ultimately, the INSIGHT Network will be a leading component of PCORnet — a national research data network that will enable researchers to perform data queries and analysis across various regions and patient populations.
The INSIGHT CRN provides…
We have assembled complete, comprehensive, longitudinal data sets on 12 million patients into a single repository.
Our database includes clinical data compiled from our participating health systems’ electronic medical records. Over time it will be expanded to include claims, biospecimen and genomic data, patient reported outcomes, and patient generated data.
Patients’ data are linked across our participating health systems, providing a broad and unique view into care patterns.
Investigators can use the data to make prep-to-research queries, conduct observational and comparative effectiveness studies, and identify subjects to participate in interventional trials.
We use a central IRB at the Biomedical Research Alliance of New York (BRANY) to ensure efficient IRB review, facilitate contracting for multi-center studies using standardized agreements, and work with sites to adopt standard processes for patient consent.
We offer a means of engaging other investigators within our participating health systems to collaborate on multi-site research projects. We facilitate subject recruitment by connecting investigators with participating sites to recruit patients to participate in trials.