Many modern physician specialists like to think of their work as grounded in strong science. Yet 5 years ago, a group of cardiologists published their findings on the science underlying over 2700 practice recommendations issued by their specialty societies. Only 314 (or 11%) were based on ‘level A’ evidence, that is, evidence based on multiple […]
Information in electronic health data that are drawn from large populations of patients is transforming health care, public health practice, and clinical research. This article describes our experience in developing data networks that repurpose electronic health records and administrative data. The four programs we feature are the Food and Drug Administration’s Mini-Sentinel program (which focuses […]
The New York City Clinical Data Research Network (NYC-CDRN), funded by the Patient-Centered Outcomes Research Institute (PCORI), brings together 22 organizations including seven independent health systems to enable patient-centered clinical research, support a national network, and facilitate learning healthcare systems. The NYC-CDRN includes a robust, collaborative governance and organizational infrastructure, which takes advantage of its […]
The Patient-Centered Outcomes Research Institute (PCORI) recently approved funding awards to 11 clinical data research networks (CDRNs) that will securely collect health information as part of the National Patient-Centered Clinical Research Network (PCORnet). The 11 clinical networks, eight of which are AAMC member-institutions, will study a range of conditions from cystic fibrosis to obesity to […]
Seven New York City health systems have been awarded $7 million in efforts to spur data sharing initiatives and more effective patient recruitment for clinical trials. The funding, provided by the Patient-Centered Outcomes Research Institute, or PCORI, will establish a clinical data research network in New York City, one of 29 such networks nationwide, officials […]